dear mr. president,i learned in 2008 that i have MOYAMOYA DISEASE, in 2009 it was decided i would have brain surgery, 2010 it was decided i would NOT be having brain surgery after one report from 1996 was finally found in my medical records comparing an MRI in 1996 to an MRI in 1994.the report from 1996 perfectly described my having moyamoya disease as far back as the MRI done in 1994. i was never told i had blockages forming in my right internal carotid artery (or that surgery was suggested) or that i had blockage forming in my right mid cerebral artery or that i had tangled blood vessels. somehow all of this along with a brain bleed in 1993 was considered a one time vascular event. i am dyslexic with half a brain and even i can see the math does not add up.
it was suggested to me that i should pursue a medical malpractice suit as this was definitely more than simple misdiagnosis. i spoke on the phone with several top medical malpractice attorneys and the all said the same thing. WISCONSIN MEDICAL MALPRACTICE STATUTE OF LIMITATIONS IS 3 TO 5 YEARS AFTER THE EVENT AND HAD NOTHING TO DO WITH WHEN THE PATIENT FINDS OUT ABOUT IT. THEY ALL SAID IT'S AN UNFAIR LAW BUT IT'S STILL THE LAW.IN MY OPINION AN UNFAIR LAW AS SUCH IS UNCONSTITUTIONAL.
ALSO,I BELIEVE THERE SHOULD BE NO STATUTE OF LIMITATIONS ON MEDICAL MALPRACTICE. THEY PAY INSURANCE FOR IT, THEY TAKE AN OATH TO DUE NO HARM...THEY SHOULD BE HELD RESPONSIBLE FOR THERE ACTIONS.
THE ONLY ONES WHO BENEFIT FROM THESE LAWS ARE THE INSURANCE COMPANIES AND THE DRs. WHO KEEP PRACTICING AS LONG AS THEY ARE NOT CAUGHT IN TIME,WHO KNOW'S HOW MANY ARE REPEAT OFFENDERS?
FEB 2011 i volunteered for clinical testing because my case is so different from other cases,i have basically blown all statistics for adult MOYAMOYA DISEASE out of the water.both my specialist and i were very excited about doing clinical tests on me,hoping i may hold some answers they have not yet seen. i also signed legal papers a few months ago to donate my body (when i'm done with it,lol) for further research of MOYAMOYA DISEASE,STROKE AND OTHER RELATED VASCULAR DISEASES. http://emedicine.medscape.com/article/1180952-overview#aw2aab6b2b2aa this is just one article about MOYAMOYA DISEASE and other diseases found to be in association with MOYAMOYA!!!!!!
I AM ANGRY!! I AM HURT!! I AM DEVASTATED TO THINK IF MY BODY HOLDS EVEN ONE ANSWER TO HELP TREAT ONE OTHER PERSON OR TO SAVE ONE LIFE THAT ANSWER MAY BASICALLY BE THROWN AWAY!!
7,000 rare diseases list 2012 THERE IS NOTHING YOU OR ANYONE ELSE CAN SAY TO ME THAT COULD JUSTIFY CUTTING RESEARCH FUNDING FOR RARE DISEASES,WITH IT YOU TAKE AWAY ALL HOPE NOT JUST FOR US BUT FOR EACH PERSON AFTER US. YOU ARE DENYING MEDICAL TREATMENT TO MEDICAL MINORITIES !! WHERE ARE OUR RIGHTS?????
http://www.prnewswire.com/news-releases/the-rare-list---you-must-see-it-to-believe-it-138468089.html THIS IS DISCRIMINATION OF MEDICAL MINORITIES AND PEOPLE WITH DISABILITIES!!!